Kelly O'Shea, who has lived in chronic daily pain for three and a half years, said she felt there was no alternative but to pay for private surgery out of frustration and desperation. Her experience comes as clinical staff warn that the specialist system for treating complex endometriosis in Wales is at a breaking point.
The deputy minister for women's health in Wales described the current setup as 'not sustainable' and said options for a regional or national service are being discussed. The warnings follow changes by the British Society for Gynaecological Endoscopy (BSGE), the national accreditation body, which are highlighting the resource challenges faced by hospitals in Wales.
Clinical staff say the situation has been made worse by funding differences between England and Wales. Unless more resources are found to increase capacity and dedicate teams to endometriosis care, they warn BSGE accreditation requirements will not be met. This could lead to a downgrading of services, a potential exodus of skilled staff, and large numbers of patients being referred to England for treatment.
At a recent cross-party Senedd group on women's health, gynaecologists said Wales either needed a nationally commissioned service or an overhaul of the funding model to reflect the true cost of specialist care. The Royal College of Obstetricians and Gynaecologists has echoed the call, urging the Welsh government to commit to sustainable funding.